Being stuck in an NHS bed caused a man’s death, an inquest has confirmed

In the year In July 2025, two months before his death, Hull, who had previously worked as a craftsman and housed Ukrainian refugees for two years. He told the BBC. About the long waits he faced for lifts, wheelchairs and beds when he lived in his own home.

He was previously in the Guinness Book of Records with his brother as the tallest twins in Britain.

“Above a certain height, you don’t,” Hull told the BBC.

He also said their standard of living was “very, very low”.

He described the difficulty of trying to find the right doctors and getting the social care he needed.

His condition led to his brother’s decision to stop taking the medication needed to continue working on the transplanted kidney he donated.

Dying, he said, “is better than lying in bed 24 hours a day.”

Hull had a rare neurological disorder. Hereditary Spastic Paraplegia (HSP) , External– Unrelated to the height – which leads to tremors and muscle weakness. Pain, fatigue and depression are common symptoms.

The research was prompted by a BBC report after local community groups began working with the family to install a roof lift – initially three months ago – and extend it to Hull’s bed.

He spent two years in a standard hospital bed provided by the NHS, which he described as “very uncomfortable” and “torture”.

The first bed extension was finally prepared, but it was placed in a position that caused the risk of suffocation.